{"id":9028,"date":"2019-03-31T04:18:33","date_gmt":"2019-03-31T03:18:33","guid":{"rendered":"http:\/\/news-papers.eu\/?p=9028"},"modified":"2019-03-15T20:58:08","modified_gmt":"2019-03-15T19:58:08","slug":"orphanananaesthesia-by-dgai-e-v","status":"publish","type":"post","link":"http:\/\/news-papers.eu\/?p=9028","title":{"rendered":"Orphanananaesthesia by DGAI e.V."},"content":{"rendered":"<p style=\"text-align: justify;\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"9029\" data-permalink=\"http:\/\/news-papers.eu\/?attachment_id=9029\" data-orig-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?fit=876%2C232\" data-orig-size=\"876,232\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Bildschirmfoto 2019-03-02 um 11.18.09\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?fit=300%2C79\" data-large-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?fit=876%2C232\" class=\"size-medium wp-image-9029 alignright\" src=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?resize=300%2C79\" alt=\"\" width=\"300\" height=\"79\" srcset=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?resize=300%2C79 300w, https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?resize=768%2C203 768w, https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?resize=750%2C199 750w, https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.18.09.png?w=876 876w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>Seltene Erkrankungen sind &#8230; selten. Manchmal ben\u00f6tigen aber auch Menschen mit (bekannten) seltenen Erkrankungen eine Narkose, manchmal, auch eine Notfallnarkose.<\/p>\n<p style=\"text-align: justify;\"><a href=\"https:\/\/www.orphananesthesia.eu\/de\/erkrankungen\/fertige-handlungsempfehlungen.html\" target=\"_blank\" rel=\"noopener\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"9030\" data-permalink=\"http:\/\/news-papers.eu\/?attachment_id=9030\" data-orig-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?fit=490%2C520\" data-orig-size=\"490,520\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Bildschirmfoto 2019-03-02 um 11.23.27\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?fit=283%2C300\" data-large-file=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?fit=490%2C520\" class=\"size-medium wp-image-9030 alignright\" src=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?resize=283%2C300\" alt=\"\" width=\"283\" height=\"300\" srcset=\"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?resize=283%2C300 283w, https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?w=490 490w\" sizes=\"auto, (max-width: 283px) 100vw, 283px\" \/><\/a><strong><a href=\"https:\/\/www.orphananesthesia.eu\/de\/erkrankungen\/fertige-handlungsempfehlungen.html\" target=\"_blank\" rel=\"noopener\">Orphananaesthesia<\/a> <\/strong>hat es sich zur Aufgabe gemacht wichtige Informationen zu Seltenen Erkrankungen zu sammeln und im Internet frei zug\u00e4nglich und damit jederzeit von jedem Ort zug\u00e4nglich zu machen, nutzen Sie diese Ressource. Hier ein paar Beispiele an dort besprochenen seltenen Erkrankungen:<\/p>\n<ul>\n<li>Sheldon-Hall-Syndrom<\/li>\n<li>Bili\u00e4re Atresie<\/li>\n<li>Beals Syndrom<\/li>\n<li>3-M Syndrom<\/li>\n<li>Alkaptonurie<\/li>\n<li>Alport Syndrom<\/li>\n<li>Homocytsinurie<\/li>\n<li>&#8230;<\/li>\n<\/ul>\n<p>&#8230; und viele mehr, hier der<a href=\"https:\/\/www.orphananesthesia.eu\/de\/erkrankungen\/fertige-handlungsempfehlungen.html\" target=\"_blank\" rel=\"noopener\"> Link<\/a> zu den Empfehlungen.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Seltene Erkrankungen sind &#8230; selten. Manchmal ben\u00f6tigen aber auch Menschen mit (bekannten) seltenen Erkrankungen eine Narkose, manchmal, auch eine Notfallnarkose. Orphananaesthesia hat es sich zur Aufgabe gemacht wichtige Informationen zu [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":9030,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"__cvm_playback_settings":[],"__cvm_video_id":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[368],"tags":[1599],"class_list":["post-9028","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-www-netzressource","tag-orphananaesthesia"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/news-papers.eu\/wp-content\/uploads\/2019\/03\/Bildschirmfoto-2019-03-02-um-11.23.27.png?fit=490%2C520","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p7fR2g-2lC","jetpack-related-posts":[{"id":19340,"url":"http:\/\/news-papers.eu\/?p=19340","url_meta":{"origin":9028,"position":0},"title":"PORQUEST Umfrage: Seltene Erkrankungen in Notaufnahmen","author":"Michael Bernhard","date":"M\u00e4rz 11, 2025","format":false,"excerpt":"Sehr geehrte Kolleg:innen, Patient:innen mit seltene Erkrankungen stellen sich h\u00e4ufig in unseren Notaufnahmen vor und verlassen diese ohne richtige Diagnose. 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